Resources
RESOURCES FOR YOU
AND YOUR FAMILY
We’re here to give you the support you need to thrive during your family’s growth hormone deficiency (GHD) journey. Helpful tools, resources, and support means you’ll be better equipped to take on the challenges of GHD.
Tools & Guides
Growth Assessment Profile (G.A.P.)
Our G.A.P. tool can help us better understand you and your child’s situation. Once completed, it will provide you with a personalized list of questions and topics to discuss with your doctor.
Getting StartedTest Your GHD Knowledge
Hopefully, this site has been helpful in answering some of the questions you had about the identification, diagnosis, and treatment of GHD. Now it’s time to see how you measure up.
Take the TestGHD Diagnosis Guide
GHD can be complicated to diagnose, from talking to your pediatrician to consulting a pediatric endocrinologist. This guide can help you through the process.
DownloadPediatrician Discussion Guide
You suspect your child may have GHD. This guide can help make sure you get the answers you need. Just bring it with you to your next doctor’s appointment.
DownloadGHD SPECIALIST Discussion Guide
You’ve been referred to a GHD specialist. This guide can help inform a discussion around diagnosis and subsequent treatment options.
Download
Advocacy
The Magic Foundation
A charitable non-profit organization that provides support services for the families of children affected by growth disorders such as GHD. They sponsor a variety of programs including in-person conferences, educational presentations, local parent events, and school nurse programs.
Visit SiteHuman Growth Foundation
One of the world’s leading nonprofit organizations focused on children and adults with rare growth, bone, and endocrine conditions like GHD. They provide research, education, patient support, and advocacy to help improve the quality of life for people affected by these disorders.
Visit SiteBullying Prevention
A helpful resource if you believe your child is experiencing teasing or bullying.
Visit Site
Helpful Links
SafeNeedleDisposal.org
SafeNeedleDisposal.org has information about safely disposing of used needles and/or injectors from your child’s GHD treatment.
Visit SiteCDC Growth Charts
The Centers for Disease Control and Prevention provides downloadable charts for tracking growth.
Visit Site
Test Your Knowledge
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Test Your Knowledge
Your Results
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